I-BFM Actual number of cases:       20 
Rare and cutaneous pediatric non – Hodgkin lymphoma registry

Registry design

Patient‘s database

Image‘s database

Registry goals…
      The project will increase knowledge about rare lymphomas in fragile population (childhood), clinico - pathological correlations and standardisation of therapy protocols in rare lymphomas of childhood, in CNS lymphomas of childhood and in skin lymphomas of childhood by means of interinstitutional/international database/ registry shared on secured web site (www.rarelymphomas.eu).
      Owing to the fact of rarity/ low incidence of such lymphomas even in specialised centres there is a necessity not only interinstitutional, but also international cooperation. Suggested international database/registry in Brno (under auspices of International-Berlin-Frankfurt-Münster study group, I-BFM ) will be designed as a virtual site which will collect all diagnostic and clinical information by means of filling the on-line accessible ( but secured by codes ) forms, placed on the web site of the database/ registry. A part of the database/ registry will be freely accessible www. atlas of microscopic/histologic images (on-line virtual microscope).

Department of Pediatric Oncology   
University Hospital Brno
Czech Republic, EU

Department of Pediatric Hematology and Oncology
University Hospital Motol
Czech Republic, EU

Institute of Pathology Brno
University Hospital Brno
Czech Republic, EU
Department of Pathology and Molecular Medicine
Charles University Prague
Czech Republic, EU

Zdenka Krenova, M.D., Pediatric Oncology Department, University Hospital Brno, Cernopolni str. 9, PC 613 00
Czech republic Pediatric Oncology Department, phone: + 420 532 234 755, fax: + 420 532 234 614, email: zkrenova@fnbrno.cz